CCS Disability Action is a membership-based organisation and a registered charity, led by a National Board. Local governance committees, staff groups and local communities also guide our work.
Our National Office in Wellington is responsible for developing policy, setting and monitoring our standards and working with other organisations and government to change attitudes.
We run the Mobility Parking scheme which supports over 130,000 people to access their local towns and facilities more easily. Our fully owned subsidiary, Lifetime Design Ltd, advocates for and provides universal design guidelines to improve the accessibility of New Zealand housing. This will benefit all people throughout their life.
David Matthews was appointed to the role of Chief Executive in September 2011.
David has worked for CCS Disability Action for 11 years - his previous roles were Regional Manager for the Upper South Region as well as Deputy Chief Executive. Before joining CCS Disability Action, he was a manager at a local and national level for Special Education Services, now part of the Ministry of Education.
David describes himself as a New Zealander born in England, is married to Helen and has three grown up children. He is a citizen of Christchurch and like other Christchurch residents is keen to play his part in the re-build of what was and will be a wonderful city and place to live.
Tena Tatou Katoa
Ko Ngatokimatawhaoroa te waka
Ko Kamareiera te Tupuna
Ko Te Ramaroa te Maunga
Ko Whirinaki te Awa
Ko Moria te Marae
Ko Te Hikutu te Hapu
Ko Shaun Kirton me Jessie Morunga oku Matua
Ko Dairne Kirton Ahau
Dairne hails from a beautiful slice of heaven - Whirinaki in the Hokianga, Northland.
"My canoe is Ngatokimatawhaoroa, my chief Kamariera and his wife Peti, my mountain Te Ramaroa, my river Whirinaki, my Marae Moria, my tribe Ngaphui sub tribe Te Hikutu, my parents Shaun Kirton and Jessie Morunga.
I am a Maori woman with a physical disability; I was born with one arm and my palm consisting of three digits. I have 3 children and run my own business Life’s Abilities Coaching where I work as a Life Coach, Facilitator / Trainer and Motivational Speaker. Subsequently I have coached / mentored people from different cultures and communities so that people are empowered to live a life they love.
Although I am proud to be Maori, I believe in a rich and diverse community encapsulated in the CCS Disability Action vision 'Including All People'."
Since 2008, Dairne has been involved with CCS Disability Action. She has been a member of the CCS Disability Action Auckland Local Advisory Committee since July 2010 and the Northern Regional Representative since the 2011 National AGM and National Vice President since June 2014.
Pru lives in rural Wairarapa with her husband Neil. Both Neil and Pru became governance members on the Local committees of CCS Disability Action Wairarapa after their second daughter was born with Cerebral Palsy.
Pru has been a member the Wairarapa Local Advisory Commitee for a number of years and is now a regionally elected member on the CCS Disability Action Board representing members of the organisation who live in the Hononga Rawhiti Region (East Coast of the North Island). This is her second appointment to the Board.
Pru has served on a number of local committees in the Wairarapa which provide support for disabled people including Riding for the Disabled and the STARS Trust. She also organises the local Boccia group.
Te Amorangi ki mua, te hapai o ki muri
The leader at the front and the workers behind the scenes.
(Meaning both leaders and workers are important.)
Originally from Rotorua, after an adventure living in Australia working in the hotel industry, including time in Ayers Rock, my husband and I returned home and are now proud to call Invercargill our new rock.
We have two energetic, smart, beautiful children who bring us joy and laughter. They happen to also live with disabilities; or Abilities as our daughter would point out – she has just won a Netball prize for her school at the time of writing this.
CCS Disability Action has always been a big part of our lives. We have been active members since 2004 and I have been a member of the local Advisory Committee and then elected co-chair in 2013. I am proud to live and support the CCS Disability Action Vision.
I believe it is important to encourage others to see that we are all one community here to look out for each other, as different as we all are; we are all the same with our own hopes and dreams.
Vicki has a lived experience of disability and the everyday issues facing living inclusively in our communities. She has been actively involved with CCS Disability Action since 1991.
A strong believer in human rights, Vicki holds local volunteer governance and trustee roles in Local Advisory Committee, Local Executive Commitee, and many other community organisations, becoming the regionally elected national board member for the Bay of Plenty and Waikato Regions in 2005.
Vicki works as a marketing associate with ReserveGroup Consulting and specialises in online marketing and web systems. Together with husband Colin, Vicki is a director of their architectural practice, Davista Architecture. On the home front, living in Tauranga, Vicki and Colin have 3 young adult sons, and the friends that come with that are always welcomed. Vicki and Colin both enjoy travelling, trout fishing, skiing, gardening, art, literature, good food, good wine and good company.
Still happily married to my darling of 27 years and a proud grandfather of many, growing up in a small Māori pa in Mangere Auckland has me firmly grounded. I have c5-6 tetraplegia as a result of a rugby league accident in March 1995 and am now dependent on a wheelchair for mobility. Support workers also assist me in living an active life.
After going through grief at my loss of ability, joining wheelchair rugby in 1996 gave me a great sense of personal achievement from adversity. This then inspired me to study in an area I am most passionate about – te reo Māori me ōna tikanga.
I am committed to volunteering my time and services to my home marae and am a strong advocate for Māori education, self-determination and the rights of all peoples with a disability. I am a Meta-Coach, specialising in Dismantling Disabilities although not active for some time because of other commitments.
Kōhanga Reo is my passion and my favourite sport is still rugby league. I am actively involved with my marae cultural activities as an adult wānanga pouako and kapa haka co-tutor whilst nurturing Tainuitanga, Waikato kawa and Te Kingitanga among our tamariki, mokopuna.
Rev Vicki Terrell lives with Cerebral Palsy.
She grew up in Auckland. Mount Street and Symonds St loomed large in Vicki’s formative years. Speech Therapy and other activities at Dadley Foundation, going to church at St Paul’s in Symonds Street and studying at Auckland University gave her a good grounding for life.
Vicki’s long association with CCS Disability Action started in the 1960s as a client receiving speech therapy and field officers’ services. The 1980’s saw her become politically active in the disability movement. Vicki moved to Wellington in the 1990s and was involved in work for CCS Disability Action. She was invited to join the Local Advisory Committee in Wellington in 1999. In 2003, Vicki was asked to apply for a Field Work position in Wellington. In late 2004 she was offered a position in policy in the National Office. One of her tasks was to facilitate the National Disabled Staff group. While training for the Anglican ministry Vicki took a break from active involvement but resumed it in 2012.
Describing disability and Christian faith as the two major strands in her life, Vicki is a Disability Community Chaplain and the Northern Elected Regional Representative to the national board. She is passionate about making the community a place where all people can flourish and reach their full potential in a world where attitudes and beliefs, as well as the built environment, are hospitable and accessible to all.
Vicki is the middle of three girls and enjoys connecting with family and friends.
A proud Cantabrian, Canterbury West Coast Local Executive Committee Chair and Board member Simon Templeton calls Ōtautahi home. Simon also serves as the Chief Executive of Age Concern after working as a registered nurse for over 25 years.
It is his passion for seeing all people given the opportunity to live a meaningful life that drew him to governance at CCS Disability Action.
“I was looking for somewhere I could contribute my skills that put people at the front and centre of every decision they make. CCS Disability Action was a perfect fit for these values,” he explains.
It’s an involvement he has relished. “I love being part of this organisation. I love the people, locally and nationally. I love the kaupapa and the strength of disabled people’s voice in shaping our work. It’s great to have a clear sense of purpose – guided by clear strategic directions.”
Simon encourages people – regardless of their work experience – to consider getting involved with CCS Disability Action. “Good governance takes a range of skills and that’s what we have today. We all have different things we can offer, so if you’re thinking about contributing in some way, I’d encourage you to get in touch with your local branch!”
Simon is optimistic about what is ahead for the disability sector. “When we talk about system transformation, it’s important to look at it as a transition not a ‘change’. Change has a start and end point, whereas transition does not. We should be constantly transitioning in order to best serve disabled people, so as long as we’re guided by the people we support good outcomes will follow.”
I was born February 10th 1951 in Gisborne. In early November of the following year I contracted polio. I used callipers and crutches until the age of 11, after which I chose to use a wheelchair for mobility. My family and I received support from the East Coast Branch of the ‘Crippled Children Society’ through to my 16th birthday. This included visits from ‘Field Officers’, Mrs Dixon and Olive Hale
Thanks to generous fundraising efforts, in 1961 my mother and I travelled by sea to Great Britain where I underwent a series of spinal and other surgeries by Professor James at Princess Margaret Rose Hospital in Edinburgh. After twelve months, more financial support came to our aid to get us home by air when the journey by sea was considered too difficult for me and because I had stayed so much longer there were no available berths on the ship.
In 1988 I was approached by a member of the CCS Disability Action National Board and invited to participate in a series of meetings with a group of other disabled people to help support and guide the organisation be more consumer driven. From there I joined the East Coast branch Committee and about the same time in the early 1990’s became President of the branch. I was a member of the branch LAC until I moved to Wellington with my wife Jenny O’Connor in 2000. I was elected to the national board and served during the period 1993 to 2002 encompassing the development of more consumer participation and bi-cultural policy leading up to the restructuring and rebranding of the whole NZCCS organisation. I have been serving on the Wellington Branch LAC/LEC of CCS Disability Action since 2003. In addition to my governance roles I continue to be involved in the music business. Most of my working life I have had various roles including music performance, recording production, promotion and retail.
Between 2003 and 2017 I worked with Capital & Coast District Health Board in various capacities. From 2003 -2009 I was the Disability Advisor – supporting the implementation of the NZ Disability Strategy and from 2009 – 2017 the Population Health Advisor – managing Tobacco Control, Healthy Lifestyle, Housing Insulation and other contracts-including a period of five years in the same role supporting the Hutt Valley and Wairarapa DHBs.
I look forward to using my skills and knowledge as I return to the national board to support CCS Disability Action branches as they move forward into the new model of support. CCS Disability Action has been a large part of my life since childhood and this makes me uniquely qualified to offer what I know from lived experience in order to enhance and improve our emphasis on person directed services.
I hail from a little slice of paradise on the East Coast of the North Island…Ruatorea
I grew up truly walking in the fusion of Maori and Pakeha world views, fortunate to have Maori and English heritage. As the last of seven children, I learnt the value of sharing and contribution for the greater good.
I also grew in the richness of having a sibling with an intellectual disability. To say his presence in my life influenced my career pathway is an understatement.
I have spent 35 years working in the disability sector in a variety of roles and for a number of providers. My career started with the Psychopaedic nursing programme at Mangere Hospital and Training School in South Auckland as a 17 year old and has culminated in my inclusion in the CCS Disability Action whanau in 2017. All of my experiences in other roles has prepared me well for the rigours of general management.
I have three gorgeous sons who are my heart. I love entertaining and feeding people – ask me about my famous burnt sugar steamed pudding – its legendary.
Kai arua Te Maunga
Waikaramihi Te Awa
Ngati Wai Te Hapu
Nga Puhi Te Iwi
Ko Janine Hoete-Thornton Toku Ingoa
Kia ora Koutou
I am the newly appointed General Manager for the Central Region from Wellington to Whanganui, Taranaki, Manawatu and Wairarapa.
I have been with CCS Disability Action since 2008, holding senior roles in a number of settings. I have worked in the Health and Disability Sector for 19 Years; my background has been in the area of Business Management and Human Services. What brought me to this organisation was that there was more autonomy to advocate and really make a difference in the lives of others – CCS Disability Action has allowed this to happen.
In my new role, it is the intention that a more strategic view of our service delivery, community development, networks and collaborations will be taken, while ensuring strong leadership at a local level, to provide services in a way that enhances self-direction for disabled people, their families/whanau and our wider communities.
Whanau is important to me: I have three wonderful children, two beautiful mokopuna, and a loving partner who make it possible for me to do the things I do.
“Whaia te iti Kahurangi ki te tuoho koe he maunga teitei”
My role is to support the running of the six entities in the South Island and to support local leadership to provide quality services to people in urban and rural areas around the island.
My association with CCS Disability Action began in 2000 when I was a student social worker at Otago University. During my placement I recognised how easily my values align with those of CCS Disability Action, and after graduation I joined the Southland branch as a Support Worker and then Community Worker (now Service Coordinator).
To alter my horizons, I moved to Western Australia to work at the Deaf Society, where I ran the employment and community services departments. A qualified sign language interpreter, I never thought when I moved to Australia that I would need to learn another language!
I saw the Team Leader role in Otago advertised in 2009 and came home to take up that position. When the region restructured, I also became Team Leader in Waitaki and later moved into the acting Regional Manager role. In October 2016 I commenced as the General Manager of the new Southern Region.
CCS Disability Action is a family affair for me. My Mum is a Service Coordinator in the Southland branch. I had my son while working as Team Leader in Otago and he came back to work with me at 11 weeks of age. My partner is a researcher at the Donald Beasley Institute and has partnered with us on projects. My stepdaughter is a student at Otago University. My work-home life divide can sometimes be a bit blurry, but I quite like that.
I began work with CCS Disability Action in July 2014. Prior to that I was at home with pre-schoolers, and undertaking some work from home opportunities.
I graduated from Massey University in 2000 with a degree in Business Studies, major in Human Resources. Following graduation I worked for MidCentral District Health Board for many years in their HR team.
My role as HR Manager means I am responsible for the HR function within the organisation: setting up and reviewing policies relating to our Human Resources, managing employee risk, managing the employment relations function (including union negotiations and disciplinary investigations) and contributing to the National Leadership team.
I am Mum to four primary school aged children, and heavily involved in our school community as chairperson of our school parents and friends fundraising committee.
I work for CCS Disability Action because I genuinely believe they make a real difference in the lives of real people, every day. My role supports our hard working staff and governance, and informs the way we talk to the world. It also supports all our wonderful supporters, without whom, we couldn’t carry out the vital work we do.
I was born in Melbourne, Australia and worked there in advertising and marketing, both as a writer-based Creative Director and a Direct Marketing and Fundraising specialist. I have worked on multiple projects for World Vision, ChildFund, the Salvation Army, the Australian Conservation Foundation and Guide Dogs, amongst others. I also spent six years working in Asia developing a start-up Ad Agency, to the point where it went global. My experience covers TV, radio, press and social media.
In 2007 I met my wonderful Kiwi husband and now call New Zealand home. I have twin sons, who are at University and a motley crew of rescue pets including dogs, cats and chooks.
I am passionate about altruism, philanthropy, philosophy, humanism, science, film and literature. I also write prose and poetry – some of which has been translated into French and Spanish online and some has been published in international journals.
I am the National Policy Coordinator at CCS Disability Action. I have worked in the disability sector for over 13 years and have a Master in Public Policy, a Master in International Studies, a Post-Graduate Diploma in Politics and a Bachelor of Arts in Politics and Religious Studies.
I help coordinate our advocacy to government. We are always pushing the government to do more to make New Zealand more inclusive of everyone. We do this through submissions, meetings with officials and by working with like-minded groups, individuals and organisations. We also always encourage people to advocate for themselves.
Currently, I live in Dunedin with my partner, two cats and two rabbits. I always enjoy talking policy so get in contact if you have any ideas about making New Zealand a more inclusive place.
I am the National Coordinator of Training. My role is to support staff in the organisation with their education, through development, coordination and facilitation of our core training.
I first became involved in CCS Disability Action as a volunteer while I was at school. Since joining the organisation I have been a Team Leader in Northland, involved in national training for over 10 years and in my current role since 2014.
I have a belief in the work that the organisation does, in an organisation that’s always looking for what’s new and what’s next, and being able to be involved in small projects that make a real difference locally.
In 2015 I travelled to Canada on a scholarship around inclusive education. I am active in education, having been involved in a school board of trustees. Inclusive education is important and I believe all our schools should be able to cater for everyone, and not leave people behind.
A year ago my husband, son and I moved home to the Bay of Islands, where I have family. We are a sailing family, spending a lot of time close to or on the water. We are involved in a Kiwifruit orchard with extended family. I’m a traveller and explorer and like to have adventures while travelling – finding a little vineyard in Central Otago while walking along the river or seeing whales from my hotel window in Napier.
Tena koutou katoa
Ko Te Ramaroa te maunga
Ko Te Hikutu te hapū
Ko te Ngāpuhi iwi
Ko Recenia Kāka tōku ingoa
Greetings to you all
My mountain is Te Ramaroa
My subtribe is Te Hikutu
My tribe is Ngāpuhi
My name is Recenia Kāka
I have a love and passion for kapa haka and people to live their life to the fullest. Providing spaces for individuals, whanau and community to have a voice and share what really makes a difference for them is important to me. I am a wife, mother and grandmother and whanau is at the centre of my universe. I have worked for CCS Disability Action for over 10 years. My current role is Kaiarahi – National Maori Development Co-ordinator.
Kei hea ra te Ao
No hea ra te Ao
Te Ao wiiwii
Te Ao waawaa
Tooku nei Puu
Tooku nei Ao
Te Mokopuutanga oo Rehua
Aanei te Ao, aanei te Waa
Where is this place, where is this space
It is a place and space
That resides within us
Where we choose
Moment by moment
Who will we be?
Ordinary or Extraordinary
I was excited to join CCS Disability Action in mid- 2014 after more than a decade working in the sector. With a BA in Psychology and Criminology followed by Honours in Criminology, I have always been focused on Human Rights and the value of all people, as well as having a fascination for social systems. Getting to work within an organisation I have long admired for its strong advocacy and inclusive focus, something which echoes my own values, feels like coming home to me.
In the role of National Manager, Contracts, Quality and Service Leadership I am focused on continuing to support the efforts of our amazing service staff while encouraging person- directed services through quality initiatives and contract opportunities.
I am passionate about people having real choices in all areas of their lives and am motivated by the part CCS Disability Action plays in supporting peoples’ journeys towards the lives they want.
I’m the National Manager – Business Innovation. I joined CCS Disability Action because I love looking for innovative ways to solve problems and improve our lives, especially within the not-for-profit and social enterprise sector.
Many years ago I created the 14-title book series Smarter than Jack that contained true reader-contributed stories about smart animals. The books were created for the benefit of animal charities around the world, for which the equivalent of over NZD$440,000 was raised. I also developed successful book projects with SANDS New Zealand and Project K, as well as a couple of business books on creating new ventures and products.
I enjoy business innovation so much that I did a PhD on business incubators, and created and taught the practice-based Master of Innovation and Commercialisation programme at Victoria University of Wellington. I loved helping students bring their ideas to life, many of which were social enterprises. Prior to this I managed a business start-up programme for the Wellington regional economic development agency. However, I much prefer doing rather than teaching, hence returning to a more hands-on role.
My husband and I live in Ngaio, Wellington, with our two children, and lots of animals. We have experience with disability within our family, and so we can appreciate some of the challenges that the people we support may face in our society.
National Manager – Business Innovation
I am the Personal Assistant to the CE, and the Executive Assistant to the National Board.
My role is primarily providing administrative and secretarial support to the Chief Executive, National Board and Management.
I joined CCS Disability Action in 2012, after having previously worked in the areas of finance, event management, general administration and security programming.
I enjoy working for an organisation that has sound and strong values about making a difference in people’s lives. I continue to learn daily about what this looks like.
My family consists of four adult children and partners and I enjoy the challenge and richness of welcoming new members to our family, getting to know them and appreciating the diversity this brings to our growing family.