Parent Quest programme supports families through school-to-adulthood transition

A new initiative funded by CCS Disability Action has provided vital support to families preparing for one of life’s most challenging transitions: the move from school into adulthood for disabled young people.

The Parent Quest programme was co-developed with parents and whānau in response to the high levels of stress experienced by parents and carers as their children approach the end of their time in the education system. This transition often marks the loss of structured support, leaving families uncertain about what comes next and how to navigate adult services, employment, and community life.

The evidence-based programme’s first workshop welcomed 16 participants, including eight mums, six dads, one sibling, and one Support Worker. It offered practical tools, emotional support, and a space for connection – empowering families to plan for the future with confidence.

"Our participants asked me to convey their deepest thanks to CCS Disability Action for funding this programme," said programme director, facilitator Dr. Annick Janson.

Annick is a parent with lived experience. With her daughter Melissa, a psychologist, she created the programme she needed when her son was growing up.

"It was truly amazing to witness the energy, growth, and connection that emerged."

Organisers were especially proud of the strong engagement from fathers, whose involvement highlighted the untapped potential of dads' contribution within disability support more broadly. The inclusion of a sibling and support worker also points to the programme’s broader value in building capability across whānau and support networks.

Colene Herbert, General Manager for CCS Disability Action’s Midland region, said the programme reflects the organisation’s commitment to supporting families through key life transitions.

"Parent Quest is a beautiful example of how targeted funding can empower families and strengthen communities. We’re proud to support initiatives that honour the lived experiences of whānau and help build resilience and confidence for the future."

A full report on the programme’s outcomes is underway.